At the launch of Dialogues: Education and Treatment for
a Well Planned Future?a national, non-branded education
initiative for people living with HIV/AIDS?an audience
member spoke up from the back of the room, concerned about
images of irresponsible sex in hip-hop and other music
videos. The topic came up because Tionne ?T-Boz? Watkins
and Rozonda ?Chilli? Thomas of the group TLC were on-hand
to promote the initiative, which encourages people living
with HIV/AIDS to become involved in their own care by learning
about the disease and treatment options, and by developing
strong communicative relationships with their healthcare
providers. They listened to the audience member and agreed
about the rampant machismo in hip-hop, but then gently
begged to differ?at least where TLC is concerned. They
pointed out that they were wearing condoms as a fashion
accessory back in the early nineties. The video for their
number-one hit ?Waterfalls? represented sex in the age
of AIDS. (Who can forget that haunting image of a buffed,
young man checking the mirror only to find a KS lesion?)
And last year, after the untimely death of bandmate Lisa ?Left
Eye? Lopes, T-Boz and Chilli set up a one-time $25,000
Lisa Lopes AIDS Scholarship through MTV?s Fight For Your
Rights: Protect Yourself campaign as a way to continue
the work that Left Eye believed in. T-Boz and Chilli?s
point is well-taken?when was the last time you heard the
mainstream media tout the positive actions the hip-hop
community has taken over the years?
The death of Eazy-E from AIDS back in the mid-nineties
perhaps first galvanized an AIDS-aware hip-hop consciousness.
But the groundswell had already started, thanks in part
to TLC. The hip-hop community?s response to fighting AIDS
now includes among its ranks Missy Elliott, Sean ?P. Diddy? Combs,
Jay-Z, Ashanti, Eve [A&U, May 2002], Mary J. Blige,
and L?il Kim, to name a few. BET?s live countdown show,
106 & Park, has kept HIV in steady rotation and that
network?s Rap-It-Up campaign has sent hip-hop ambassadors
around the country to promote AIDS awareness. TLC was able
to establish its place in this firmament early on because
of their uncanny ability to craft tunes about the pleasures,
responsibilities, and politics of sex in a way that resonated
with everyone, but especially women. The Grammy-winning
group didn?t become the best-selling female group of all
time by playing it safe, though. Graphic lyrics abound,
sure, but their music does not deliver market-savvy fantasies
about how women should relate to their sexual desires:
It delivers the realities that many women face in life
and love. Listen to the words from ?Unpretty,? off the
FanMail CD: ?You can buy your hair if it won?t grow/You
can fix your nose if he says so/You can buy all the make-up
that MAC can make/But if you can?t look inside you/Find
out who am I to/Be in the position to make me feel so damn
unpretty.?
Now T-Boz and Chilli are lending the power of their celebrity
to Dialogues, but they aren?t simply in it for the photo-op.
(They are quick to point this out, knowing that their latest
album, 3D, is still on the charts but adamant that their
involvement not be brushed off as some sort of PR stunt.)
The initiative is simply the latest?and certainly not their
last?effort in their longstanding commitment to self-empowerment
and sexual health. They said (T-Boz and Chilli often talk
as a team, completing or adding to each other?s thoughts
seamlessly) that their involvement is ?from the heart,? borne
from knowing people close to them who are struggling with
or have died from HIV/AIDS as well as from a concern about
the wider community, specifically African-American women.
Dialogues is?well, it?s all in the title. As Dr. Douglas
Dietrich, professor of medicine at Mt. Sinai Medical Center,
pointed out at the launch, one of the obstacles standing
in the way of quality care is good communication between
patient and doctor. Another speaker at the launch, Dr.
Luther Virgil, a physician at Providence Hospital in Washington,
D.C., added that trust and support in this relationship
are also necessary. Bridging this communication gap is
important for adherence to meds, says Dr. Virgil. Empowerment
is also important?becoming informed about and active in
one?s own health goes a long way in meeting the challenges
of living with HIV or AIDS.
When I talked to T-Boz and Chilli by phone from a studio
in Atlanta, they agreed. Says Chilli: ?Often, people with
HIV don?t know enough [about HIV] to talk to their doctors
or nurses. They feel overwhelmed. But if they don?t ask
questions, they leave the doctor?s office and are confused
as to what they should be doing and why. They need to get
the facts from Dialogues and get involved in their own
care so they have the best chance of living a long time
with HIV.? Chilli, who joked that she thinks she was a
doctor in a previous life, mentioned that she had an experience
with a doctor whose ?bedside manner wasn?t so cool,? and
that having a strong relationship with one?s healthcare
provider was important ?especially if people can?t talk
to anyone else [about their status].? T-Boz feels that ?if
you show you?re educated and interested in your own health,
[then] you get more respect [from your physician].? She
added: ?It?s important because they need to have an open
line of communication to understand how to fight HIV now
and in the future. This communication?and knowledge?will
give them the empowerment to take an active role in their
own care.?
?We decided to get involved with Dialogues because there
are a lot of people with HIV who aren?t doing anything
about it,? says T-Boz. Last year, the Centers for Disease
Control and Prevention estimated that up to one-third of
the 850,000?950,000 HIV-positive living in the U.S. do
not appear to be receiving treatment. A survey of 1,259
HIV-positive people reported that more than sixty percent
had not discussed long-term treatment planning with a healthcare
provider in the previous six months. As a study of AIDS-related
deaths at a Texas hospital showed, only forty-eight percent
of patients who died between 1999 and 2000 were on a HAART
regimen at the time. The study, published in Clinical Infectious
Diseases, cited factors such as an inability to adhere
to meds and an HIV diagnosis less than six months prior
to death as the primary causes; also cited was an inability
to tolerate meds due to liver disease. The study begs for
future research, especially in light of the fact that a
disproportionate number of those who died were minorities.
Beyond medical issues and limited access to care, why aren?t
people?especially in minority communities?taking charge
of their health?
This question is far too complex to be answered here.
Stigma and fear undoubtedly play a part, and the post-Tuskegee
relationship between many African-Americans and the medical
establishment has never been truly mended. And gone, it
seems, are the days when a person living with AIDS was
more likely to know more about the disease and its possible
treatments than his or her physician. Dialogues takes the
point of view that many living with HIV, and particularly
African-Americans and Latinos, do not feel empowered to
become involved in their own care. Finding out the reasons
why is important, but Dialogues seems to think we can find
out on the way?while we?re being treated.
T-Boz emphasizes this first step: ?Being African-American
women and finding out HIV is growing so rapidly in our
community made it important to speak out now?to tell people
to find out about HIV, and, if they have it, to treat it.? Even
if someone thinks they can?t afford treatment, she says,
they should still seek it. T-Boz and Chilli have been educating
themselves more and more about the specifics of HIV/AIDS
and its treatment. Chilli admitted that she at first did
not believe how quickly HIV was spreading in the African-American
community. It?s understandable. Even as the HIV transmission
rate has waned among whites, it has shot up in African-American
and Hispanic communities. Currently, nearly seven out of
ten HIV-positive people in the U.S. are either African-American
or Hispanic. Among HIV-positive women, more than six out
of every ten are African-American; nearly two out of ten
are Hispanic. Alarming statistics, considering that African-Americans
and Hispanics only make up about twenty-five percent of
our nation?s population.
?As African-American women, we hope to reach our peers
who are being hit hardest right now by HIV,? she says. ?We
were surprised to see how much it is affecting this population
and want to do everything possible to serve as role models
to reach the African-American community with the education
and tools necessary to fight this disease.? Indeed, Dialogues
is targeted at underserved individuals: African-American
but also Hispanic-American women, patients with co-morbidities
(such as hepatitis C and substance abuse), women of childbearing
age, and healthcare providers. Dialogues provides a handy
guide for understanding and managing HIV, as well as tips
on choosing your healthcare provider and developing a communicative
relationship with him or her. It lets patients stay in
control of their decisions by suggesting what might be
considered when approaching treatment and managing HIV.
The guide also provides other reference materials that
cover everything from diarrhea to dry mouth, as well as
personal planner tools such as a space to jot down questions
for healthcare providers, a prescription tracker to record
meds and the instructions for taking them, and a treatment
planner. Developed by Agouron Pharmaceuticals, a Pfizer
company, along with the expertise of the Association of
Nurses in AIDS Care, the American Public Health Association,
and the National Association of AIDS Education & Training
Centers, Dialogues was smart enough to realize that T-Boz
and Chilli were experts in perhaps the most important field:
self-empowerment.
?We all?especially women?are vulnerable to entrusting
our partners [with our health],? says Chilli, about the
obstacles that prevent individuals from tapping into self-empowerment. ?We
feel invincible, but should really take charge and protect
ourselves. Dialogues, like our music, empowers people to
get involved in their own care?to ask questions so they
understand what their doctor is saying and let him know
what they think and can do. Dialogues helps people learn
enough about HIV so they feel like they can talk to their
doctors and take a role in their own care.? Nurturing self-empowerment
logically led to the setting-up of the Lisa Lopes AIDS
Scholarship last year. Says Chilli: ?As a tribute to Lisa,
we announced a $25,000 AIDS educational scholarship as
part of MTV?s Fight For Your Rights: Protect Yourself campaign.
The Lisa Lopes AIDS Scholarship was awarded to one young
person showing dedication and leadership in the fight against
HIV/AIDS and was coordinated by LIFEbeat: The Music Industry
Fights AIDS, a national non-profit youth HIV prevention
organization.? That individual was Ineudira Barbosa, who
was awarded the scholarship based on her sexuality and
sexual-health peer education work with Teens for Education,
Advocacy and Leadership in Cambridge, Massachusetts. ?As
you know,? Chilli continues, ?Lisa is one of the reasons
we?re getting the word out about this new HIV program.
It was Lisa?s idea to wear condoms on our outfits to promote
safe sex. Now we?re taking the next step by encouraging
people to get the facts about HIV and, if they are positive,
to work with their doctor so they don?t run out of treatment
options.?
TLC?s latest single, ?Turntable,? is a life-affirming
song dedicated to Lisa Lopes. It talks about believing
in yourself and overcoming struggle and captures exactly
why they believe in Dialogues so much: ?Whatever your dilemma
may be/You?ll learn/Life is worth it/Watch the tables turn?.?
For more information, log on to the Dialogues Web site:
www. HIV-Dialogues.com, or contact the initiative by phone
at (800) 576-6600.
Chael Needle interviewed Mara Brock Akil, creator, writer,
and producer of UPN?s Girlfriends, for the April issue.